CDC Positive Western Blot

I came home this past Wednesday from my second trip to San Francisco to see my LLMD (Lyme Literate Medical Doctor). She’s the one who gave me a clinical diagnosis for Lyme Disease four weeks ago.

During this visit I got my blood tests results back and I am VERY positive for Lyme Disease, even based on the ridiculously narrow CDC guidelines (for both past and present infection). You don’t need a positive antibody test to be diagnosed with Lyme (because Lyme is a clinical diagnosis based on symptoms and history, not lab results), but I feel vindicated to have it show up in labs.

I’m surprised by the fact that I’m still making the antibody after being sick for so long – it shows that my immune system is still trying to fend off the bug. I’m surprised because it’s more common for the immune system to just shut down so that no antibody is present (which is one of the reasons there are so many false negative Lyme Disease lab results).

I also tested positive for Bartonella (a common co-infection found in people who have Lyme). My LLMD suspects I have other co-infections as well, including Babiosis and Erlichiosis. In addition, she found two unrelated infections: H. Pylori (the bacteria that is related to ulcers), and shingles!

Next week I’ll start taking a combination of antibiotics and Prilosec to kill off the H. Pylori. Then I’ll continue with the antibiotics, which will hopefully knock out the Bartinella and other co-infections, as well as the Lyme bacteria.

The next confirmation of Lyme infection will be when I respond to the antibiotics, either by feeling better, or by experiencing a Jarisch-Herxheimer (or “Herx”) reaction. A Herx happens when the bacteria dies-off and releases poisons into the body, temporarily making symptoms worse. Oh joy. I may have a reaction either way immediately, or it could be months. I’ll keep you posted.

In the meantime, I have a TER-rible cold, and I’m tracking my Lyme symptoms (there are 47 on my list), and reading, spinning, knitting, and writing when I have the energy.

I’ll try to post an update once per week, in case you want to check up on me. 😉

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10 Responses

  1. Congrats on your diagnosis.

    What a great way to keep everyone informed.

    I hope the treatment is 100% successful.

    Jay
    XXOOXX

  2. Elizabeth,
    I am so happy to hear that you finally have some answers as to your illness. I have thought of you often.

    When you are feeling much better maybe we can do a spin demo out at the new zoo with our twin spinners.

    I am delighted that you chose to record your journey back to health and wellness and I look forward to updates on your progress.

    I also have forwarded your blog to my younger sister Cindy whose prior health issues have been linked to lyme disease.
    Health and happiness,
    Diane

  3. Thanks Diane!
    Elizabeth

  4. Elizabeth, I love your blog!! so informative and personal… thanks for bringing us closer to you! I see lots of light at the end of your health journey! In the meantime, it is encouraging to know that massage will help push those poisons out quicker! many blessings, Fannie

  5. Thanks so much, Fannie!

  6. Great idea, sis. Thanks for setting this up and keeping us posted. I am putting this in my bookmarks bar! I am so thrilled that your future is looking brighter, too.

    Keep up the good work and know that Amy and I are sending you our prayers and thoughts from L.A.
    David

  7. Hey!
    I think it’s great that you have a blog! I spend most of my time doing homework on the computer, so this will be a great way for us to stay in touch when were not in arms reach of eachother… or a phone.

    Wow. They just keep switchin’ up those answers on you, huh? I’m glad they finally figured out what it was though. I don’t know very much about Lyme disease. Maybe you could update/explain it to me someday in the near future.

    I would love to spend time with you someday soon, even if i have to be doing homework.

    Much love!
    Your niece,
    Sarah

  8. Thank you, guys. It means a lot to hear an encouraging word from you.

    Love,
    Elizabeth–>

  9. Hi, I live near San Francisco and am concerned that I might have late stage Lyme. am looking for LLMD in this area and don’t know what specialization to look for, any ideas or a referral for me? thanks

  10. Hi Bob;

    I see Dr. Harris in Redwood City, Ca. I did an internet search for an LLMD, saw that Dr. Harris’ father owns Igenex Labs, and figured that meant that Dr. Harris has garnered a lot from his father, along with his medical education and research.

    If you have any questions please feel free to email me here or at firstborne@aol.com

    Blessings;
    Ava

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