August Blues

I’ve been waiting for things to take a wonderful turn for the better so I can report something lovely. Hasn’t happened, so here’s the boring, difficult truth.
The June uterectomy/ooferectomy surgery was a success (seems I had debilitating endometriosis), and I still have one healthy ovary intact. Also survived a July, fully of birthdays and anniversaries [...]

Once More Unto the Breach, Dear Friends

Although I’m not King Henry and I’m not battling the French, I am in need of a speech of valor.
I landed in the ER this past Saturday, and was kept overnight until I could prove I could keep down semi-solid food. Ready for this? It was exactly a year — to the day — since [...]

Back

It’s been a while since I’ve posted, mostly because I had a terrible summer of mostly feeling bad. Same with fall, although there were a few good days (or sometimes hours) where some of you actually saw me!
Since I last wrote, I’ve received these diagnoses via lab tests from my new doc:

Late neurological Lyme disease
Bartonella [...]

When Did I Get Infected?

My friend, Sally, asked me this recently, wondering if Lyme wasn’t a mostly East Coast disease. I thought I’d give the long version response here, so I could give her a shorter answer by email. (And thanks for the good question, Sally!)
My docs and I have traced my Lyme symptoms back to my childhood. It’s [...]

CDC Positive Western Blot

I came home this past Wednesday from my second trip to San Francisco to see my LLMD (Lyme Literate Medical Doctor). She’s the one who gave me a clinical diagnosis for Lyme Disease four weeks ago.
During this visit I got my blood tests results back and I am VERY positive for Lyme Disease, even based [...]

It’s Lyme.

Here is the letter I sent out to my family earlier this week:
———-
My dear family,As you probably already know, I went to San Francisco a week and a half ago to see a doctor that specializes in Lyme Disease (known more specifically as Lyme Borelliosis).
First, I want to send out a big thank you to [...]